• Evaluator-blinded trial evaluating nurse-led immunotherapy DEcision Coaching In persons with relapsing-remitting Multiple Sclerosis (DECIMS) and accompanying process evaluation: Study protocol for a cluster randomised controlled trial 

      Rahn, Anne Christin; Köpke, Sascha; Kasper, Jürgen; Vettorazzi, Eik; Muhlhauser, Ingrid; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-03-21)
      Background: Multiple sclerosis is a chronic neurological condition usually starting in early adulthood and regularly leading to severe disability. Immunotherapy options are growing in number and complexity, while costs of treatments are high and adherence rates remain low. Therefore, treatment decision-making has become more complex for patients. Structured decision coaching, based on the principles ...
    • A new graphical format to communicate treatment effects to patients—A web-based randomized controlled trial 

      Kasper, Jürgen; van de Roemer, Adrian; Pöttgen, Jana; Rahn, Anne; Backhus, Imke; Bay, Yasemin; Köpke, Sascha; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-07-17)
      <p><i>Objective</i>: Patients making treatment decisions require understandable evidence‐based information. However, evidence on graphical presentation of benefits and side‐effects of medical treatments is not conclusive. The study evaluated a new space‐saving format, CLARIFIG (clarifying risk figures), aiming to facilitate accuracy of comprehension.</p> <p><i>Methods</i>: CLARIFIG displays ...
    • Risk knowledge in relapsing multiple sclerosis (RIKNO 1.0) - Development of an outcome instrument for educational interventions 

      Heesen, Christoph; Kasper, Jürgen; Fischer, Korbinan; Köpke, Sascha; Rahn, Anne; Backhus, Imke; Poettgen, Jana; Vahter, Liina; Drulović, Jelena S.; Van Nunen, An; Beckmann, Yeşim Yetimalar; Liethmann, Katrin; Fulcher, Gary; Solari, Alessandra (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-10-02)
      Background Adequate risk knowledge of patients is a prerequisite for shared decision making but few attempts have been made to develop assessment tools. Multiple Sclerosis (MS) is a chronic inflammatory disease of young adults with an increasing number of partially effective immunotherapies and therefore a paradigmatic disease to study patient involvement. <p>Objective/methods Based on an item ...
    • Subjective and objective knowledge and decisional role preferences in cerebrovascular patients compared to controls 

      Riechel, Christina; Alegiani, Anna Christina; Köpke, Sascha; Kasper, Jürgen; Rosenkranz, Michael; Thomalla, Götz; Heesen, Christoph (Journal article; Tidsskriftartikkel; Peer reviewed, 2016-08-02)
      Background: Risk knowledge and active role preferences are important for patient involvement in treatment decision-making and adherence. Although knowledge about stroke warning signs and risk factors has received considerable attention, objective knowledge on secondary prevention and further self-esteem subjective knowledge have rarely been studied. The aim of our study was to investigate knowledge ...
    • Training doctors briefly and in situ to involve their patients in making medical decisions—Preliminary testing of a newly developed module 

      Kasper, Jürgen; Liethmann, Katrin; Heesen, Christoph; Reissmann, Daniel R; Geiger, Friedemann (Journal article; Tidsskriftartikkel; Peer reviewed, 2017-05-18)
      <p><b>Objective</b>: To carry out preliminary evaluation of a training module for doctors to enhance their ability to involve their patients in medical decision making. The training refers to the shared decision-making (SDM) communication concept.</p> <p><b>Methods</b>: The training module includes a comprehensive manual, a corresponding video tutorial with communication examples and a 15-minute ...